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Showing posts from July, 2017

On Obtaining a Wheelchair

You might remember about a month ago I mentioned on the facebook page about the possibility of obtaining a wheelchair.  I got the order from my doctor and took it to a place not so far away.  Good news.  A place only about thirty minutes away that sells what I need and takes my insurance.  They said it should take approximately two weeks.  Nice.  Nope.  The people working that day were very nice, don't get me wrong.  I've spoken to one of them on the phone about once a week since then.  You see, the owner has his own health issues, and, long story short, the order for my wheelchair is still on his desk.  So, this morning I started calling around again.  Sooooo frustrating.  I really wish the lists that the insurance companies provide would be narrowed down a bit.  I searched for durable medical equipment within twenty miles. Twenty four places came up.  I called all but four of them. Only two sell wheelchairs. They sell cpap machines, or orthopedic supplies, or provide h

Who is Your Hero?

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Who is your hero, and why?  What can you do to be more like the people you look up to? I have lots of heroes.  You can read about them all here:  It Takes A Village .  For this specific post, I'd like to talk about my biggest hero, my husband. My husband who married me before he knew that I would become terminally ill.  My husband who has stood by my side every step of the way since this nightmare started.  Literally -- it started the day the biopsy was ordered, the wonderful people at the front desk called him at work and said, "We're doing this now, come if you can." so he did.  He couldn't be in the room with me, but I knew he was right on the other side of that door.  I could feel his presence.  I leaned on him all the way home, where he tucked me into bed and made sure I was comfortable. The following week he drove me through the snow, and held my hand in the doctor's office while the PA gave us the bad news.  He didn't let go of my hand that da

Scanxiety

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Scanxiety is the anxiety that builds up before a medical test, and even more while awaiting the results of said test. Last Friday, I had a routine every-three-month CT scan, and a routine every-six-month bone scan. They're keeping an eye to make sure those pesky cancer cells don't get bigger and/or appear anywhere else. I haven't heard from my doctor, and I'm in the no-news-is-good-news camp. That being said, scanxiety is a very real thing. Until I hear good news from my doctor or see it on the report, there's always that little voice in the back of my head.... So yesterday while I was receiving my regular treatment, I asked the nurse to print out the reports for me.  Here's the bottom line: CT Scan results:   CT Scan results looking at the lung mets we're keeping an eye on: Bone Scan results: Needless to say, I breathed a huge sigh of relief when I read the reports.  I'm good for another three months.  😊