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Showing posts from 2017

On Obtaining a Wheelchair

You might remember about a month ago I mentioned on the facebook page about the possibility of obtaining a wheelchair.  I got the order from my doctor and took it to a place not so far away.  Good news.  A place only about thirty minutes away that sells what I need and takes my insurance.  They said it should take approximately two weeks.  Nice.  Nope.  The people working that day were very nice, don't get me wrong.  I've spoken to one of them on the phone about once a week since then.  You see, the owner has his own health issues, and, long story short, the order for my wheelchair is still on his desk.  So, this morning I started calling around again.  Sooooo frustrating.  I really wish the lists that the insurance companies provide would be narrowed down a bit.  I searched for durable medical equipment within twenty miles. Twenty four places came up.  I called all but four of them. Only two sell wheelchairs. They sell cpap machines, or orthopedic supplies, or provide …

Who is Your Hero?

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Who is your hero, and why?  What can you do to be more like the people you look up to?

I have lots of heroes.  You can read about them all here:  It Takes A Village.  For this specific post, I'd like to talk about my biggest hero, my husband.

My husband who married me before he knew that I would become terminally ill.  My husband who has stood by my side every step of the way since this nightmare started.  Literally -- it started the day the biopsy was ordered, the wonderful people at the front desk called him at work and said, "We're doing this now, come if you can." so he did.  He couldn't be in the room with me, but I knew he was right on the other side of that door.  I could feel his presence.  I leaned on him all the way home, where he tucked me into bed and made sure I was comfortable. The following week he drove me through the snow, and held my hand in the doctor's office while the PA gave us the bad news.  He didn't let go of my hand that day as w…

Scanxiety

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Scanxiety is the anxiety that builds up before a medical test, and even more while awaiting the results of said test.

Last Friday, I had a routine every-three-month CT scan, and a routine every-six-month bone scan. They're keeping an eye to make sure those pesky cancer cells don't get bigger and/or appear anywhere else. I haven't heard from my doctor, and I'm in the no-news-is-good-news camp. That being said, scanxiety is a very real thing. Until I hear good news from my doctor or see it on the report, there's always that little voice in the back of my head....

So yesterday while I was receiving my regular treatment, I asked the nurse to print out the reports for me.  Here's the bottom line:

CT Scan results:




CT Scan results looking at the lung mets we're keeping an eye on:





Bone Scan results:





Needless to say, I breathed a huge sigh of relief when I read the reports.  I'm good for another three months.  😊

Wonder Woman

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People wonder why I'm a fan.  Why I watch the old series every Saturday night at 8:00pm.  Why I took her on our most recent family vacation (she was our version of Flat Stanley).  The short answer is that she reminds me to be strong.

She reminds me to be strong, even when I want to throw in the towel.

Every time I have to make multiple phone calls to try to schedule multiple appointments for the same day, which entails going to multiple departments within the hospital.   The other day I realized I could find my way from the Lombardi cancer center to the Bles Infusion center to Cardiology without looking at the directional signs on the wall or asking for help. Glad and sad about that at the same time.

Every three weeks when I go for my IV infusion.  Every six weeks when that infusion is coupled with an appointment with my oncologist.

Every evening at 7:00pm when my alarm goes off reminding me to take my daily medication.

Each and every time my port is accessed (if you don't kn…

The Cost of Cancer

The Monetary Cost
Cancer is expensive.  I have good health insurance.  Really good health insurance.  Even with very good health insurance, though, cancer is expensive.  Every time I visit my primary care doctor, which is about every four months, I have a $10 copay.  No big deal.  Every time I visit my oncologist, which is every six weeks (down from every three weeks while I was undergoing chemo), I have a $15 copay.  Every time I have treatment (Herceptin and Perjeta infusions), which is every three weeks, I have a $30 copay.  In addition to these routine things, I see my cardiologist, my surgeon, my gynecologist, my ophthalmologist, and my oncology rehab specialist periodically.  That's $15 each visit for each specialist.  On top of these copays, there are other medical costs.  Luckily, for my Tamoxifen prescription, I am able to receive a 90 day supply, which is no cost to me.  My other prescriptions, however, are between $10-$20 each month.  Then there are the physical therapy …

On Using a Cane....

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I did it. I bought a cane.
I have balance issues. I can't walk up/down even a curb without holding onto something for balance. I've found myself at work walking next to the wall in case I need to reach out to steady myself. Whenever I'm standing, I find the nearest thing to lean on. Whenever I walk with my husband or sons, they automatically put out their arm for me to hold on to.  I'm going to physical therapy for my balance issues, in addition to the muscle cramping. They think that it's fatigue driven.  I think they're right.  I am working on pushing through the fatigue, but wow, it's hard. So, I had been mulling around about getting myself a cane. Not to help me walk, but just to help me keep my balance. Hopefully I will be carrying it mostly and just using it to lean on when there's not a wall or a post handy.   In that aspect, I think it would be very helpful.  On the other hand, I worry that I will become dependent on it.
When I mentione…

The Night I Almost Met Lynda Carter....

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If you know me at all, you know that Lynda Carter is a favorite celebrity of mine.  In 1975, when I was 10 years old, Wonder Woman came on the air.  Back in that time, there was no Netflix, no on-demand, no Tivo, no VCRs.  If we wanted to watch something, we made sure we were home at the time it came on, or we waited until summer reruns, and try to catch it then.  I made sure I was in front of the TV each week when it came on.  Little did I know I would be watching this all these years later.

You might remember one of my blog posts, It Takes a Village.  In it, I mention how watching Wonder Woman helped me through the hard days of chemo, and surgery recovery.  I finally found a quote that really sums it up:

"People always ask me why I love Wonder Woman....   It's because she reminds me tobe strong whenI don't want to be."
I don't know who to attribute the quote to, but it really is fitting.  To help me remember, I have some Wonder Woman themed things -- sunglasses, …

It's the end of March! No posts since January! Where have I been?!

I've been here.   Tired, but here.  In January, I was pulled from my regular duties at work to help out elsewhere, which took away all of my downtime.  No time some days to even turn the computer on.    Nice change of pace, but exhausting.  Today should have been the last day for that, we'll see tomorrow.


I have a facebook page connected to this blog, where I post shorter items, doctor visit check-ins and updates, medical test results, things like that.  I try to add some levity with posting comical items, too.  So, if you read this blog, you also want to like that facebook page.  Here's the link:  Living With Stage IV Breast Cancer facebook page.


So, where have I been?  Other than working with no downtime, I spent an unexpected week or so off of work in February being a co-caregiver (along with my husband) to our 19 year old son, who had an emergency appendectomy.  He ended up spending a week in the hospital, and then was sent home with ten days worth of three different I…

In Your Face, Cancer!

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Last week while at a medical appointment, I was knitting with some very bright pink yarn.  The person I was with knows how I feel about "pretty pink ribbons" and how I feel that the awareness campaign needs to shift to a research campaign.  So, as I'm knitting with this obnoxiously pink yarn, she remarks on how bright it is.  Yep, it sure is bright.  Paraphrasing here, she said, "No, it's really bright.  It's not frilly light frou frou pink.  It's 'In your face, Cancer!' pink.  It's 'Take that, Cancer!' pink.  It's a good pink for you."


So, when I was having a pedicure on Saturday, I was originally going to go with a shade of blue.  Did I?  Nope.  When I related the above story to my wonderful nail stylist, and told her I wanted to find the most obnoxious pink they had, we found this:


So, IN YOUR FACE, CANCER!
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If you want a great place for spa services, I highly recommend Nails & Faces of Joy Spa

My First 911 Call

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I say my first 911 call because I know there will be more.  I have a terminal illness.  I watched my father live with cancer.  I watched my sister live with cancer.  I watched my mother deal with being paralyzed on her right side as the result of a stroke.  Sadly, I did not pay enough attention to how they lived with it.  I really wish I had been more attentive, and a better caregiver; a much better member of their respective villages.

Here's what happened last Monday.  Because of my treatment the previous Saturday, I knew what was coming.  You learn to predict when the side effects will hit.  I took some Imodium as a preventative.  Choked on the damned pill.  Have you ever seen one?  They're really small.  Leave it to me....  You would think that I could just cough it up, right?  Nope, that sucker was stuck.  So, I called (as well as I was able with a very quiet, raspy voice) to my boys, who were (thank God) home.  David heard me and came running.  He got Jimmy.  While Jimmy …